Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Saturday, November 9, 2013

Detroit details/Adenoid surgery/Modern day miracle!!

Wow! It's been awhile since my last update. First of all I'm still doing wonderful in school. I'm making more and more progress everyday. My speech is unbelievable. I sound so grown up now. I say anything I want to say and you can understand me most of the time. I love to perform and make people laugh. In fact, I had about 4 rows of people laughing at the LSU game the other day. I'm such a clown. I am also learning my letters and numbers. I can identify several letters, numbers, and letter sounds. I can also tell you the beginning sound of a word. It's so amazing to listen to me. I have several friends at school. I can tell you their names as well as all my teachers names and therapist. I'm getting so smart. In other news I have been fighting sinus infection after sinus infection since about March. I get better and then have to be put back on antibiotics. I went for my 2 week check on Wednesday and she said its time for my adenoids to come out. I have a constant sinus drip that is always in the back of my throat. This drip is causing the problems. Once we remove my adenoids I should start feeling a lot better. We also got the news that we have to go back to Detroit in January. We were planning on going this summer but Dr. C, my mom, and dad think its best if we go ahead and go back. I will leave January 18. We are leaving a day early because it is saving us $250 on airfare. We will stay at the Ronald McDonald house when there. I will see my neurosurgeon and January 20. I will then have a 3 hour EEG done on January 21st. I will see Dr. C after the EEG is over. I then have an appointment with a pediatric hand surgeon on January 22. This doctor will tell us if I need to have surgery on my right hand. I will then fly home after the appointment. My mom and I will be traveling alone this time. It's too expensive to fly everyone there. Please begin to pray that we will have a safe trip. Also please begin to pray for my test and all my appointments. The reason we are doing an EEG is to check to see how things are now that I have been off my medicine for almost a year. We are excited to see Dr. C and for him to see how well I'm doing, but we are also nervous about the EEG and the possibility of needing surgery on my hand. If I do need surgery that means we will have to go back to Detroit for this surgery. Also keep me in your prayers this Tuesday as I have surgery to remove my adenoids. It's never easy when you have to be put to sleep. You would think that after all we have been through this surgery wouldn't seem like anything but any surgery makes you nervous. Thanks for your prayers and I will keep you update. I'm leaving you my very 1st school picture. You can see how happy I am at school. This picture means so much to my family. When you are unsure of the future and then later get to see this smiling face going to school you are reminded that you have witnessed a modern day miracle :)