My blood pressure was absolutely perfect when I got it checked yesterday. I also only had 15 spasms yesterday. I had a cluster of 6 in the morning and a cluster of 12 around 1:30. Today I have had 23 spasms. I had a bad cluster of 21 when I woke up this morning and have only had 2 since. I really wish these things would stop but I'm trying to be patient. My mom is getting really impatient but she knows its going to take a little while before I get all better. I am getting more irritable and not smiling as much. These steriods are making me feel bad. I'm also gaining lots of weight. Thats ok though because as soon as I get off this medicine I will go back to my normal weight. I did get to go to the oyster festival parade this morning. I slept in my stroller the entire parade. I didn't even wake up when the bands and fire trucks came by. I was really tired. My big brother Jacob caught lots of stuff for me though. Ok well I go back to the doctor Monday for blood work, urine test, and blood pressure checks so I will update sometime Monday afternoon. Please pray that God will heal my brain. Love you all very very much!!!!!
Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
3 comments:
He made acute baby Jesus!
Sweet Jadon!!! Such a tough little guy!!
I'm still praying....keep the faith!!!!
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