Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Thursday, May 13, 2010

I can sit!!


So they decreased my medicines yesterday and I can sit today. I'm able to hold myself up for about 15 seconds. Wow!!!!!!! This is huge progress for me. I have only taken two naps today. A 30 minute nap this morning and and hour and a half this afternoon. I am so glad I have more energy. That clonazepam is so hard on my little body and I'm almost off of it. My mommy has been telling them I'm on too much medicine. Well once my bloodwork showed it they finally decreased it. My family is so proud of me. I have had about 30 spasms today so that is less than yesterday. Maybe this steriod will work this time. I sure hope so. Thanks for all your prayers!!!!!
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