Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Thursday, July 22, 2010
We are going to Boston.
I've been doing great since I got home. In fact I slept all night long last night. Mommy let me sleep next to her and I slept so good. I went to sleep at 9:00 and didn't wake up until 7:00 this morning. This is the first time I've done this in a long time. Usually the seizures wake me up and I can't sleep. Mommy said I can sleep by her every night if I sleep all night. Mommy and Daddy have been looking at many epilepsy specialist. We finally made our decision and mommy made an appointment for me to go to Boston Childrens Hospital. Boston is the #1 pediatric neurology hospital in the world. We will be seeing the head neurologist who also specializies in epilepsy. So I will be going with my mommy and daddy to Boston on September 29. We are hoping we can get some answers. We have to send all of my testing that has been done in New Orleans. I want to say that we love Children's in New Orleans. They have gone out of their way to help us. We just want another opinion. We want the best outcome and I think any good mommy and daddy would want to do everything possible to help their child. So thats what is going on with me. I will keep you all updated. Please continue to pray for me as I fight to overcome epilepsy. I also added the share buttons to each post. You are more than welcome to share my story. The more prayers the better :)
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1 comment:
Awesome:) A second opinion never hurts!-Beckie
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