Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Thursday, January 20, 2011
Quick Update
The topamax wean is going great so far. I'm not having any increase in seizures. I'm now on 45mg in the morning and 45mg at night. We will decrease it again next Thursday. Please continue to pray that I can get off this medicine. Other than that my mommy and daddy are enjoying seeing me happy and more alert. They are also very thankful that my seizures are staying about the same. Obviously we would like them to decrease but we are very thankful that they are staying under 100. They are also very mild. I'm not losing control of my entire body like I was. In fact, I can have them and still remain sitting. I'm also not hitting my head on things. So this is all great news. Thanks for praying for me!! Love, Jadon
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