Goodbye topamax. I hope to never see you again. So yes I'm totally off topamax now. I took my last dose yesterday morning. I did so well with the wean we were able to get me off about a week earlier than originally planned. So NO MORE topamax. I'm just a little excited about this. In fact I said Dada for the first time this morning. Amazing!!!! So now what? We wait for our appointment on March 1. We do have a call in to my neurologist. She was out Friday so she will call us back sometime Monday. My seizures are still very little and not very intense. I have my good days and bad, but I'm having more good than bad. Hey what we are considering bad were actually my good days in the past. Only about 50 spasms. We don't know why I have days that are worse than others but that is pretty common with seizures. My seizures also look different. I'm not falling forward or dropping my head anymore. They look more like when you get a chill. So we are thinking I'm having a different kind of seizures but we are not sure. Talking about seizures. This Friday will make a year since my diagnosis. I just can't believe its been a year. Oh how our lives have changed in the past year. We have learned to celebrate the little things in life, to love more, to cry more, to be thankful for what we do have, to fight when the doctors don't give you much to fight for, to trust God more, to pray every second you can, to believe in miracles, and more than anything to have Faith and know that our God is in control. We have met some amazing doctors, therapist, and friends. I have to be honest and say that I do wish I never had to meet these people, but I'm so thankful for each and every one of them. They have helped us get through this past year more than they know. Please take a minute to listen to the song on my profile. The words are just perfect. I posted the lyrics below. Please continue to pray for me. I have come a long way in the past year and I just know things are going to continue to get better for me. Your prayers have helped me so much!!!
I have unanswered prayers
I have trouble I wish wasn't there
And I have asked a thousand ways
That You would take my pain away
That You would take my pain away
I am trying to understand
How to walk this weary land
Make straight the paths that crookedly lie
Oh Lord, before these feet of mine
Oh Lord, before these feet of mine
When my world is shaking
Heaven stands
When my heart is breaking
I never leave Your hands
When You walked upon the Earth
You healed the broken, lost, and hurt
I know You hate to see me cry
One day You will set all things right
Yea, one day You will set all things right
When my world is shaking
Heaven stands
When my heart is breaking
I never leave Your hands
Your hands
Your hands that shape the world
Are holding me, they hold me still
Your hands that shape the world
Are holding me, they hold me still
When my world is shaking
Heaven stands
When my heart is breaking
I never leave You when...
When my world is shaking
Heaven stands
When my heart is breaking
I never leave...
I never leave Your hands
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