We have started to decrease my steriods. I'm only getting them 3 times
a day right now. Tomorrow we wean to 2 times a day. My spasms have not
increased any. I'm having about 30-40 a day. They are not very
intense. So the steroids have helped me alot. My therapist have even
noticed how much stronger I'm getting. I haven't had any side effects
either. My blood pressure has been fine, I haven't gained any weight,
and I'm definitely not irritable. In fact I'm much happier. We don't
know what the plan is from here. I go see my neurologist Monday so we
will see what she says. Please pray that we will find the right
medicine to stop these things with few side effects. I have shown so
much potential these last 3 weeks. It's so sad that we can't stop
these and allow my brain to work correctly. Keep praying everyone.
Your prayers are working. I'm doing much more than expected.
Sent from my iPhoner
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