Catching Up

So I have alot to caught you up on. First of all I'm still doing amazingly well. I'm trying to repeat everything anybody says. No I can't say all the sounds but I try so hard. I can now say 18 words. I only had 10 before surgery. My speech is just taking off which is so amazing being that we took out the part that your speech would normally come from. I did have a little set back. I started running a low grade fever Wednesday. My mommy took me to the pediatrician Thursday and she said that I had a little discoloration in my nose. She went ahead and started me on antibiotics just to be safe. Well Saturday my fever went up to 104. My mommy called my neurosurgeon in Detroit. He said that it should not have anything to do with my surgery but to follow up with my pediatrician on Monday. He also said it was safe to go ahead and give me motrin. They told us no motrin after surgery but it had been long enough. Thank God because tylenol wasn't working. My fever continued to get worse. Sunday morning it was 105.4. My mommy and daddy decided to bring me to the ER. Fever that high is very scary and it was causing me to vomit. They did lots of test on me. All the test were negative. So we ruled out RSV, pneumonia, and flu. They decided to admit me overnight for observation. They also wanted to run more test. Today we found out that I had adno virus. I have been in the hospital 3 times due to this virus. The good news about this time was I did not have any seizures. Yes 105 fever and NO seizures. I was released from the hospital this afternoon and I'm doing much better. My fever is still going up to 102 but we will take that over 105. My fever should go away by tomorrow or the next day. Thanks to everyone who prayed for me. I have some videos of me doing some amazing things that I will try to post tomorrow. It's the same ones I have on facebook but I know some of you do not facebook so I'll try to get them up. Please continue to pray for me. You know me I"m fighting hard and I'm not going to let this virus get in my way. Love you all, Jadon

2 weeks

It's been two weeks since my surgery and I continue to do extremly well. I'm scooting all over my mommies house. She said I make her nervous but she lets me go. I'm getting stronger and stronger everyday. I have regained all except three of my skills prior to surgery. I'm not crawling, I'm not pulling up and climbing on things, and I'm not walking in my walker. I try to do them but because of my right sided weakness I can't. I'm sure I will get them in the next few weeks. My smile is still a little crooked but it gets better every day. I'm talking and trying to repeat words. Not only can I repeat my words but I'm doing it much better than before surgery. It's really unbelievable. My main problem right now is sleep. I do not want to sleep. I'm up all during the night and I'm only taking one nap a day. I just want to explore and learn. My attention is so much better since my surgery. I can stay focused on one item for several minutes. My mommy and daddy love to just watch me and the things I'm doing. I wanted to let everyone know that some friends of ours of putting a fun run and 5K race together. You can visit the following website for more details. We would love to see you there.

http://www.jadonsrunforrecovery.com/

We are also selling t-shirts. Please email my mommy if you would like one. I want to thank Cory and Lori Trahan for designing the shirts. I absolutely love them. I'm leaving you a picture so that you can see what the shirts will look like. My mommies email is monica.pailet@gmail.com

Thank you all so much for praying for me. I'm amazed at how many people are following my story and praying for me. I have so many prayer warriors and I definitely feel your prayers. I'm so thankful that God is using me to touch so many people's lives. My prayer is that everyone who reads about me and follows me will know that there is a God and will become better people because of me. Love you all, Jadon

I'm doing amazing!!!

Sorry I haven't blogged we have been very busy since we left Detroit. So let me catch you up. I did excellent on the flights home. I slept the first flight and played a little on the second and then fell asleep. I was so happy when we got to NOLA. I was much stronger and so happy. That was until they started messing with me. I then started fussing everytime someone walked in the room. I started therapy the next day. I was doing great. I was holding my head up and I tried so hard but I finally couldn't go anymore and I got sick and then fell right asleep. I want everyone to understand that the therapy at NOLA was absolutely great. I'm just not strong enough yet to handle the requirements that insurance needs me to do to be inpatient. I also do not like hospitals. They make my anxiety go way up. With that said my mommy and daddy thought it would be better to take me home. It has been the best thing for me. I have been so happy at home. I'm doing new things every day. Yesterday I said the word go. Today I said PaPa, Jacob, and puppy. In order for you to realize how awesome it is that I'm talking I have to tell you this. You use the left side of your brain for communication skills. Well they removed my left side. You see my communication skills had already transferd to my right side before I had surgery. I believe with all my heart that God was preparing my brain for this surgery all along. I'm also putting weight through my right arm. I can get up on all fours. I'm moving my right arm. I'm trying so hard to learn to crawl again. I will get it. I'm also able to stand on my legs as long as mommy is holding my waste. Its totally amazing. My family is so excited to get to witness this miracle that God has done in my life. Please continue to pray for me I still have a long way to go. Also thank God for what he has done. I have an EEG two weeks from now that will rule out seizure activity so please start praying for that we receive great results. I'm sure we will. Love you all, Jadon

Oh for those of you interested I'm leaving a picture of my CT scan. You can see that one side has brain and the other no brain. I find this totally amazing. By looking at the picture it will definitely make you believe in miracles.

We are coming home!!!

I was discharged from the hospital late yesterday evening. By the time we got to the hotel it was too late to blog. I really enjoyed sleeping in the hotel bed. It was much better than the hospital. I got to sleep by my brother. He stayed right by me all night and played with me this morning. We managed to get to the airport this morning with all our bags. We got a wheelchair and it has helped alot. I'm still so weak. So yes we are at the airport in Detroit waiting for our flight!!! When we get to NOLA I will have to go straight to children's for therapy. We were hoping to get to go home for a night or two but because of insurance reason we have to go straight there. We will be there anywhere from one to two weeks. If my anxiety level doesn't get better we are going to come home and do therapy in my home where I'm more comfortable. So we will see how I do. Please pray for safe travels.

Sent from my iPhoner

The Best News Yet!!!

They took my last drainage tube out yesterday. I was so glad to get it out. My head feels much better now. I had a great day the rest of the day. I did get sick last night but it was due to the pain medicine. I do not like the taste of it and it makes me sick. I had my CT scan this morning. There is no fluid build up so I do not need a shunt. We will have to watch for fluid build up in the next few weeks but I should be ok. I lost my IV today and they are not putting another one in. I'm super excited about this. I have 0 cords attached to me :) I'm going to stay at the hospital tonight in order to make sure I can handle all meds, foods, and liquids without IV. If I do well then we will be discharged tomorrow. We will then stay at the Ronald McDonald House that night. If I do ok then we will stay at a hotel by the airport Wednesday night and fly home Thursday. The doctors say it is fine for me to fly. They have had several patients fly home after surgery so we should be fine. I will then be admitted to NOLA Childrens hospital for inpatient therapy for another week or two depending on how I do. Right now I'm pretty weak so it will probably be more like two. Please pray that I can handle all the meds by mouth and pray that I will not get sick. I'm so ready to get out of here. Thanks for praying. The doctors say I'm doing amazing. I know that God is the reason I'm doing so well. All the praise and glory go to Him. Tomorrow makes a week of 0 seizures. I used to have 1400. It's totally amazing that they can take out half your brain and you can do so well. It will definitely make you believe in miracles!!! I've changed my song to How Great Is Our God. He has definitely answered our prayers. Please continue to pray for me and don't forget to thank God for what He has and will continue to do for me. Love, Jadon

Working Hard

I'm feeling better and getting stronger each day. Yesterday afternoon the speech therapist came in and I signed more for her. She was blowing bubbles and I wanted her to do it some more so I told her. I didn't move my right hand, I just brought my left hand over to my right. Pretty smart :) I haven't said any words yet but I will. I try to move my mouth to say the words and then I fuss because I can't do it. I will keep trying until I'm able to do it. I had another great PT/OT session today. I sat up in my bed and held my head up most of the time. The therapist is supporting my neck in this picture but I did sit up while holding up my head for a few seconds during therapy. I'm one determined little boy. I have been smiling and laughing some too. Especially for my brother Jacob. I can't wait to get home so we can play. My last drainage tube will come out tomorrow. I will then have my CT Monday. So please pray that my circulation will pick back up and I will not need a shunt. When you pray please do not forget to thank God for 0 seizures in 4 days. I could just jump up and scream as I type that. It really is amazing. Some people have been saying things such as I never knew how blessed I was until they read my story. Well I do agree, you are very blessed but I wanted you to know that we are blessed as well. You don't know how blessed my family is to have me and to be able to see God work. I have been their greatest blessing even though this is very hard. I have made each and every one of them a better person. Please continue to pray for me and I love you all very much!! Jadon

More Great News :)

I am still doing really well. I'm eating and drinking. Since I'm doing this they turned my IV liquids down. I'm taking my pain medicine by mouth only and doing great with that. They were able to take one of my drainage tubes out this morning. I didn't like it to much but it feels much better now that it is out. The plan is to take the second drainage tube out in two days. They will then do a CT scan Monday or Tuesday to see if the circulation has picked back up. If it has I will not need a shunt. So please pray my circulation picks back up. I do not have to wear the gauze on my head anymore. This makes me very happy. You know I do not like hats anyway and the gauze was bothering me. I had an excellent PT session this morning. I picked my head all the way up two times. I also moved my right arm. They put ice on my arm to help stimulate the muscles and sure enough I moved my right elbow up. Praise God!!!! I'm not moving it all around but since I did move it this morning we know that it will come. I have minimal swelling and I'm slowly getting my strength back. I'm leaving you a picture of me that we took today. I wanted everyone to see how GREAT I look!!!! Keep praying we still have a long way to go. Oh and I have been seizure free for 3 days now!!!!!!!! God is Great!!!!