Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Thursday, November 22, 2012
Just wanted to tell everyone I hope they have a great Thanksgiving. I have so much to be thankful for this Thanksgiving. I was reminded of just how generous all of you have been to me through all of this. This time last year you were cooking turkeys as we prepared for my surgery. It's getting really emotional the closer it gets to my 1 year of seizure freedom. All of the feelings are coming back as we remember all that we were doing to prepare this time last year. I would never have believed that I would be walking and talking so soon. God had bigger plans than we could have ever imagined. So yes we are extremely thankful this year. We realize just how blessed we are. I'm walking better each day and I can now say up to 7 words at a time. I do not use 7 words very often but I can do it. Please remember all my friends who are still having seizures everyday. It's way to many and I pray that one day there will be a cure for epilepsy so they do not have to suffer anymore. To all my friends out there still having seizure don't think you haven't gotten your miracle because every one of you are a miracle. Love you all and Happy Thanksgiving!!! Remember to thank God for all the blessing in your life :)
Wednesday, November 7, 2012
I have a few new things to tell you. First of all my mommy found a place that does lite gait treadmill training. This is the therapy that she learned about at the hemi conference that is suppose to be really great for hemi kids. We are hoping it will help me walk more smoothly. I'm also going to be doing a therapy called suit therapy. This is a therapy where they put a suit on you with bands. They use the bands to train the muscles to work correctly. Kinda neat. You can google suit therapy and read more about it if you are interested. We are very excited about these therapies. We will have to travel to Mandeville to get them but if it helps it will be worth it. The other new thing is I got my dates for my 24 hour EEG. I will be admitted on January the 8 and then released on the 9th. Please begin praying that we will get great results from this EEG. If this EEG is clear, I will get to begin weaning off the last seizure medicine I'm on. Yes I will be medicine free for the first time since I was 4 months old. Thanks for praying for me and I love you all very much. Oh and guess what? I will be 10 MONTHS seizure free on the 10th. Thank you GOD :)