Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Monday, February 25, 2013

No meds and doing awesome!!

Well I've been off all my seizure meds for a week and half. I continue to do great. I'm actually progressing even more since we started the wean. The main two areas that have improved since being off the meds are my attention span and my speech. My attention span has slowly been getting better but now that I'm off the meds I can attend to a task for longer periods. My speech has also improved greatly in the past 3 weeks. I'm now saying sounds more clearly, I'm using pronouns, I'm saying longer sentences, and I'm able to verbally tell you what I did at school and therapy. A few other new things that I'm able to do now is I can do knob puzzles, I can stack 10 blocks, I can identify a circle, square, and triangle, and I can go get objects that are the color you tell me to get. I can count to 20 now and I know the letter sounds for a,b,c, and d. Don't forget I'm only 3 and I had hundreds of seizures a day for almost 2 years so for me to be doing these things is so amazing!!!
Many of you knew that I went on my grant a wish trip over mardi gras break. I had so much fun with my family. It was a much needed get a away for my entire family. I want to thank the Louisiana State Police for granting my wish and sending us to Walt Disney World. My mommy made a video that I'm attaching in case you want to watch it. I hope you enjoy it and thanks for always praying for me!! Jadon

Monday, February 18, 2013

Neurologist Appointment

I had an appoinment with my neurologist today. I haven't seen her since September. She said I looked great. She understood almost everything I said. She was very impressed with how well I was speaking. She said the things I'm saying are very intelligible. The problem is an articulation problem but she is NOT concerned and said I will eventually get it. She said I've only been talking for a year now so its impressive that I'm speaking so well. She also said that I do not have to have any more test for a long time.Praise God!!! She was glad to hear that I'm finished with my meds and she thinks I'm going to be just fine. We have to go back in 6 months which is around the same time I have to go back to Detroit. So for the next 6 months I'm going to enjoy not having to go to the doctor, not having to take meds, and not having to have any bloodwork or test done. Please pray that I will continue to do well off the seizure meds and please thank God for what he has done in my life. We never thought there would come a day when I didn't have to take meds and just look at me today. A true miracle:)