Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Monday, July 22, 2013
I've been staying busy lately going to lots of Doctors appointments. I went to the allergist last week to get my paper work done to bring my epi pen to school. Well while I was there I had to be put on antibiotic because I had a sinus infection. I have to go back to the allergist this Friday for allergy testing. They are also going to retest to see if I'm still allergic to ants. We are hoping that I'm not and that I will no longer need my epi pen. Once my allergy testing is complete we will go back to my ENT and see if I have to get my adenoids out or not. My brother and I had our well check today. Of course I showed out for the doctor. She was very impressed with my speech. I'm just a chatter box right now. My pediatrician was also impressed at how well and fast I'm developing right now. She checked me out and then let me play with her doctor tools. I told her to open her mouth and I shined her light in her mouth. My pediatrician thought that was funny. I'm such a little ham and am always making people smile. I also saw my eye doctor today. He said my eyes look great. He still doesn't know exactly how much vision loss I have. He said right now it is looking like I'm seeing about half of what I should be. We knew this was a side effect before we did the surgery though. He said as I get older he will be able to tell us more. As of now I do not need glasses or vision therapy. He said we will do vision therapy when I get a little older. He checked to make sure I wasn't color blind and he laughed when he said I'm not because I passed the test with 0 problems. I am able to point to colors when you ask me to point to a particular color but I will not say it when you ask what color something is. I'll get it before long. Mommy said now that she knows I'm not color blind she is going to push me extra hard to learn them. Other than doctors appointments I have just been enjoying my summer. I did get all my school uniforms and supplies. I'm getting excited about school and getting to go with my mommy and Jacob to LES. Thanks for all your prayers. I've made it a year and a half with 0 seizures!!!!!!