Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Thursday, June 2, 2011

Hospital Day 2


Today has been a better day for me. I'm not nearly as fussy as yesterday. My daddy and brother came to visit me today. I was so excited to see them. Jacob wanted to take me home and I sure wanted to go. My seizures haven't been any better today. Still less intense but not much decrease. My neurologist said if we do not see any more improvement by tomorrow afternoon, we will stop the steroid. So we will just have to wait and see how I do tomorrow. We are trying to stay positive. I did get to go outside this afternoon. Mommy and I sat by the fountain for about an hour and I loved it. Thanks for praying. Love ya, Jadon

1 comment:

Susan said...

Monica, Hang in there and give Jaydon a kiss for us and Jacob, if he is still there. We love them both very much and hope God will heal Jaydon's little body. Love you, Aunt Susie and Uncle Lionel