Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Sunday, June 17, 2012

Enjoying Life!!!

Right now we are just enjoying life. We have cut back on some of my therapies. Just remember my mom does therapy with me all throughout the day so its ok that we cut back some. We are trying to relax and enjoy our summer. My RaRa took us to the beach this past week. I had such a great time. I just love the beach, the sand, and the pool. I even got to play putt putt golf and ride the go carts. I was just tall enough to get to ride them and it was definitely one of my favorite parts of the trip. I left some pics for you to see. As far as development, I continue to make progress each day. I just made 5 months with no seizures. It's hard to believe that 5 months have passed. The progress in those 5 months have far exceeded what we originally expected. You see God had a plan that was greater than what we could ever imagine!!! Please continue to pray for me and that I will remain seizure free. Also please pray for my friends who are still having lots of seizures a day. Especially my friend Connor. He just started a new medicine and it is helping so please pray that the medicine will continue to help his seizures. Also begin praying for my trip to Detroit. It is a month away. I will have a MRI while there to check everything out. Thanks for all your prayers. Love, Jadon

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