Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Wednesday, November 7, 2012
A few new things!!!
I have a few new things to tell you. First of all my mommy found a place that does lite gait treadmill training. This is the therapy that she learned about at the hemi conference that is suppose to be really great for hemi kids. We are hoping it will help me walk more smoothly. I'm also going to be doing a therapy called suit therapy. This is a therapy where they put a suit on you with bands. They use the bands to train the muscles to work correctly. Kinda neat. You can google suit therapy and read more about it if you are interested. We are very excited about these therapies. We will have to travel to Mandeville to get them but if it helps it will be worth it. The other new thing is I got my dates for my 24 hour EEG. I will be admitted on January the 8 and then released on the 9th. Please begin praying that we will get great results from this EEG. If this EEG is clear, I will get to begin weaning off the last seizure medicine I'm on. Yes I will be medicine free for the first time since I was 4 months old. Thanks for praying for me and I love you all very much. Oh and guess what? I will be 10 MONTHS seizure free on the 10th. Thank you GOD :)
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2 comments:
Congratulations on being able to get LiteGait therapy. Please contact us or have your therapists contact us with any questions that may come up as they start.
sorry- forgot to give you email address! education@litegait.com
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