Epilepsy awareness day is tomorrow and I'm asking all my friends and family to wear purple to support epilepsy awareness. I'm so thankful that I no longer have epilepsy but as all of you know epilepsy has left its scar on me. I will never have 100% function of my right hand because I no longer have my motor cortex that controls movement on that side of my body. This is all side effects of my brain surgery that I had to have to save my life. We will never complain because we are truly grateful that I'm no longer having seizures daily. Oh and I can tell you that I give the best one handed hugs around :) I pray that one day there will be a cure for epilepsy so that none of my friends have to suffer another seizure. Until then I will do my best to tell my story and to spread epilepsy awareness. Thank you all so much for your support. I love you all!!! Jadon
Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
No comments:
Post a Comment