Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Thursday, January 9, 2014

The Scar I Wear


This picture is the scar that I wear everyday. Luckily I have lots of thick blonde hair to cover it up. It is the scar that saved my life. We were hoping that it would be a little thinner than what it is, but we are actually very thankful for this big ugly scar. It is the reason I am able to talk today. The reason I can walk. The reason I can learn. The reason I can develop. The reason I am alive and healthy. It is the scar that was made to remove half of my brain in order to give me life. Today is my 2 year seizure free birthday!! It has been 2 years since this scar was made. 2 years since my parents brought me to that operating room, turned everything over to the surgeons, and sat and waited with faith that I would never have another seizure. 2 years ago this was a very painful,sad, stressful, but hopeful day. A day that didn't seem real. A day that we wish no one had to go through. Today 2 years later, we celebrate with joy. The last seizure we have seen was on my way to the operating room 2 years ago. I couldn't go more than a few minutes with out any seizures before my hemispherectomy. And now today I am 2 years seizure free. Shout to the Lord for He is good. Thank you all for your continued support and prayers. We love each and every one of you and are so grateful to be able to share my story with you. You have all been apart of my healing process with all of your prayers and support. Here is a video that my mom made of my progress this year. I hope you enjoy it.

1 comment:

Kathy Buono said...

Hey Jadon,

Your scar looks like a part in your hair. It will probably fade a lot over the coming years. I'm so glad to hear you're doing so well. Our prayers are with you and your family always.


The Buono's