Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Sunday, August 3, 2014

Tonsil surgery update.

I had my tonsils removed Friday. I had to have blood work Tuesday and I did great. I didn't even cry which was awesome. We have such bad memories from blood work when I was younger. I'm doing really well post op. I ate some macaroni and cheese Friday night and I'm drinking plenty of liquids. The doctor said my tonsils were so big and infected that they had to be hurting me on a daily basis. Of course I never complained. The worse part for me has been the coughing. When I start to cough is when the tears start. Each day gets better. In fact last night I scared my mommy because I slept so good and quiet. In the past you could always hear me breathing at night. Well last night you couldn't hear me at all and my mom kept waking up to check on me. I woke up this morning and I feel great. I haven't had my pain medicine since yesterday around 7pm. I'm such a tough little guy. Other than that I did complete my 3 weeks of intensive therapy. I had a rough start the first 2 days but I did well the rest of the time. I missed 2 days because I wasn't feeling well but I did well the rest of the time. I'm taking a break for the next 2 weeks from therapy and then I will start going back weekly once school starts. Speaking of school my mom has to go back to work tomorrow and my brother and I go back Thursday. I just go that morning and then I will start the following week after Kindergarten testing is complete. I want to go back to school, but I want to stay in PreK with Ms. Sanders. I'm sure I will like my new teacher once I get started. I'll let you all know how school goes next month. Thanks for always praying for me! I'm leaving you a picture of my brother and I at the pediatricians office the other day. This pic was taken at the beginning, it wasn't long until we took these girl looking gowns off. LOL Anyway we went for our well checks. We have both grown 3 inches since last year. Our pediatrician said we are growing and doing well!! She was so impressed with how well I was speaking. She just couldn't get over how well I'm doing. She said I'm an impressive little boy :) If you look at the picture below, you will notice a cross. Well during the eye exam, the nurse asked me what that was. I said it's on a doctors badge. She just laughed and said well you get extra credit for that one. I've heard it called several things but not that. Lol

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