Detroit results

We made it to Detroit. I had my 3T MRI today. The doctor said it looks the same as my last one. This is good news that nothing has changed. I did really well with the sedation. I woke up before the nurse tried to get me up. I immediately drank my juice and ate some crackers. The nurse said I would probably sleep most of the day and not really eat alot. Well I've been up all day and I have done nothing but eat. LOL. I also got to meet my neurosurgeon today. He is amazing. He answered almost all of my mommies questions on her list before she could ask them. He said that he has been doing brain surgeries for over 18 years. He said in that 18 years he has only lost one. That is bc she was from Australia and had another condition that they were unaware of and she had complications due to that. He also went over the surgery procedure from start to finish. He said they will do the first surgery on the 5th. They will place the electrodes on and they will put in a drainage tube. I will be in the PICU for a day and then I will move to a room. I will be able to play and I will be fully awake. They will get the information they need and then will decide what needs to be removed. He said he can't tell us for sure but he also believes that alot of my functions have transferred to the right side. He said this based on the tissue that isn't working on my left side. We know this bc of my PET results. We will know alot more once the first surgery is done. I will then have my second surgery which will be 7-10 hours. They will have to give me blood during the surgery :( After surgery I will go to the PICU. They will monitor me for blood clots and any complications. He said he has only had 3 patients who have had this but it is a side effect and it needs to be watched in case they need to go back in. I will then go to a room. I will be on IV antiviotics to help prevent infection. I will still have two drainage tubes in. Hopefully within three days circulation will pick back up and they can be removed. Sometimes they do have to put a shunt in. I will also have a metal plate and 3 screws. He said that the bone will actually grow over the screws within 3 months. Kinda amazing. If everything goes well I'll get to come home two weeks after surgery which will leave us here for three weeks. We did learn that we are not ready for this. I don't think we ever will be. It's
very scary but we trust these doctors. I can't explain it but it just feels right. I know it's what has to be done and I know God has sent us to this place. Again I can't explain how intelligent these doctors are. They are amazing and I trust them. Oh one more thing. He said depending on which surgery we decided to go with there is a 90 % success rate. Pretty amazing right. I might regress some but he said it will come back. Even my speech. My mommy said she will be very sad if she doesn't hear me say momma after surgery but if it helps in the long run it will be worth it. Keep praying everyone. Though we aren't ready, the waiting is so hard. I saw this on the refrigerator at the house today "God didn't say life was easy but he did promise to be there with you every step of the way." Love you all, Jadon