Seizures, sick, neuro appointment, prayer request

My seizures haven't been the best lately. I'm having about 80 a day again. Surprise surprise. We are praying that they will just stay at 80 until surgery date. I can a least function at 80. When they increase to 150-200 is when the regression starts. I think this is just a reminder of why we need to do the surgery. My mommy and daddy say they have to try surgery. It's only fair to me so that I can have a chance. Even though I can't talk you can hear it in my cry " Mommy please make them stop, mommy what's going on, help me mommy". So yes I'm saying the seizures that make me cry are back. On top of all this I've been sick. Mommy brought me to the doctor Monday and they put me on antibiotic for a sinus infection. Then Tuesday afternoon I started running a high fever. We thought it was related to the sinus infection but no I broke out in a horrible rash today. I also have ulcers in my mouth and fever blisters on my mouth. The doctor said it was hand, foot, and mouth disease. I probably picked it up in the doctors office when I went to get my antibiotic for my sinus infection. I can't catch a break right now. Hopefully this rash will go away soon and I can get better. Ok so enough of the bad stuff. I went to see my neurologist in NOLA Tuesday. She did receive the paper work about my surgery. She agreed with the surgery. She said she has done everything possible for me. She also agreed that I can't continue to develop unless we stop these seizures. She also said I have lots of potential if we could only get them to stop. She said that she would talk to the head of neurology about doing my therapy after surgery in NOLA. Well she walked out to write my new prescriptions and guess what the head of neurology was in the clinic. She agreed to let us do therapy in NOLA. She also agreed with the surgery. She then introduced us to the lady in charge of therapy in the hospital who also just happen to be in the clinic. So yes God was definitely looking out for us that day. My mommy was very nervous about the appointment and everything was perfect. Since we are going to do the therapy in NOLA we may only have to stay in Detroit 3 weeks. It all depends on how I do after surgery. When I'm stable enough to transfer we will transfer. We are very excited about this. Please continue to pray for us. We are definitely feeling your prayers. Everyone is being so helpful to us and we are so thankful to have all of you in our lives. I'm attaching a picture of a little boy that was just diagnosed with infantile spasms in our area. Please pray for him. He is the same age that I was when I was diagnosed. My mommy has been talking to his mommy. We are praying that the ACTH that he is on now will stop his seizures. One last thing. We are in the process of making a prayer blanket for me to take to Detroit. If you would like email my mommy at monica.pailet@gmail.com with your prayer and we will put it on my blanket. Thanks again for the prayers. Love you, Jadon