Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Tuesday, May 7, 2013
Great News!!
My mommy talked to my neurologist in Detroit today. They decided that I do not have to go back to Detroit this summer. I'm doing so well that he said we can wait another year before we go back. The main reason we were going back was to let him evaluate my hand. I'm still not using it as much as we would like but I can use it and will use it when I want to. So we will wait another year and see how I'm doing then. We just aren't ready for surgery yet and feel like we should just wait. In the meantime my neurologist said to let him know if we have any problems in the next year. Thank you all for your prayers. We are very excited that I'm doing so well and can skip this trip.
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