Test Results

We got my test results back this morning. My MRI is not normal anymore. When we did it in October, they said it was normal but questionable in one area. Well like they expected my left hemisphere is were the problem is located. My right hemisphere is normal. My left hemisphere is significantly delayed with more water than I'm suppose to have and less fat. This means possible dysplasia but we can't see on MRI due to the excessive water blocking the white matter. So we are going to come home and get a PET scan done as well as a 24 hour video EEG to see if I qualify for surgery. The neurologist didn't give us much hope that medicine will ever help me. I have already had 2 rounds of ACTH, 2 rounds of prednisolone, IV steroids, topamax, keppra, clobazam, clonazepam, trileptal, vimpat, banzel,lamictal, and the ketogenic diet. Of those therapies 5 have increased seizures, others have done nothing, and one helped but then stopped after a while. So based on my history of anticonvulsant medicines, it is not likely that we will find one to control my seizures. We will continue to try though. With God all things are possible. He basically told us today that surgery would probably be my best option if the PET and 24 hour EEG reflect the MRI. We don't really know what to think about this. Yes it would be awesome if they could go in and remove the part of my brain that is causing all this but it is very scary. We know that God will continue to direct our path as I continue on my journey.