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Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Wednesday, August 3, 2011
Sorry I haven't been able to update. I'm not happy and we are not getting any good news. All bad. I had to fast yesterday for my PET which didn't get done bc of frequency of my seizures. So now I can't eat again today and my PET isn't until 1. I'll update as soon as I get definite results. Please pray for us. My mommy is exhausted and I'm just mad and ready to get out of here.