Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Tuesday, September 13, 2011
My appointment went well today. She is taking me off lamictal. It really hasn't helped and I have become so miserable on it. It will take about 4 weeks to get me off of it. We are also starting a new medicine called zonegran. I start it tonight and it will take about 4 weeks to get on a reasonable dose. Again we are praying that this medicine will help controll my seizures. We went over the seizure med list and there are only 4 that we havent tried. This is not good everyone. We are running out of options. We leave in a week to go to Detroit. We dont understand why I have to suffer but we are trusting God and we know he has a great plan for my life. Keep praying everyone. Love y'all, Jadon