Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Friday, February 3, 2012

:( In the hospital yet again.

I just can't seem to stay out of hospitals. We got a call from children's Thursday saying that my blood cultures were positive and we needed to come back to the ER. Well it has been horrible since we got here. They ordered a spinal tap to test for meningitis. They had to poke me three times before they got me. They then had to start an IV. I have been poked 11 times in the last 3 days due to IV issues. My mommy said her heart is just breaking for me. We were hoping to stay out of hospitals for a long time but oh well. The only good thing about this is I'm not having any seizures. Praise God. So now to the culture results. We still do not really know what is wrong. We have to let the cultures grow another day. They thought that they may have just been contaminated because the bacteria that is growing usually is a skin bacteria but it can get into the blood. The reason they think it is in my blood is because I'm much better today from the antibiotics. My fever has not gotten above 100.8 which is a huge difference compared to 104 yesterday. They did say that it is not meningitis. Thank you God. That scared us really badly last night that they had to test for that. The plan now is to continue IV antibiotics until we get the results of tomorrow's cultures. They will then decide how long I will have to stay here. It could be up to 10 days so please pray that it will not be that long and that we will get great rest results back. Also pray that my fever doesn't spike. If it does they will have to get more doctors involved and more test. Thanks for praying for me its means so much to my family. I will beat this and get better!!
Love, Jadon


Rickie Mullendore said...

Praying for you and your family. Praying for good outcome.

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