My days have been great. I'm learning so many new things. I talk all day long. I repeat everything I hear. I'm starting to label things. A few things are grass,sky,bed,ball,outside,all family names,eat,drink,sock,pow pow(for gun),key,bath,egg,chick, and many more. I say tv when I want to watch tv. I say pee pee and poo poo when I go to the bathroom. I answer yes and no questions correctly. You can actually have a conversation with me. It's unbelievable. I have learned the color blue and say blue when you ask me what color is this. We are working on red,yellow, and green now. I say yellow most of the time correctly but don't have it mastered just yet. I can consistently point to my head,ear,belly,toes,eyes,nose and also say those parts while pointing. I can say three animals sounds when asked correctly and also say the animals name. I use to say the same animal sound for every animal but not any more. Of course I can repeat any animal sound my mommy says but I know 3 independently. I can now answer who is this questions and what's that questions. I also say what's that when I want you to tell me what something is. I'm just amazing my mommy and daddy with all my progress. It's totally amazing that I'm not even 4 months post surgery and I've made so much progress. God is really showing us just how powerful He is. He has given me a new life. My motor skills have kinda been on hold the last week or so. I can take steps but I'm scared to do it. You have to remember I'm 3 feet tall trying to learn to walk so I have farther to fall so it's kinda scary. I will get it though and my mommy is not worried at all. She said just whenever I'm ready. I did learn to get off the couch this week which makes my mommy happy because she doesn't have to get me off all day long :) We have decided to cut back on some of my therapies. I will not have therapy on Mondays and Wednesdays anymore. It's too much therapy and I'm getting overwhelmed and not wanting to do therapy. It's ok because my mom does therapy with me all throughout the day and I don't even realize it. One of the best therapies I'm doing right now is swimming with my mom. I can do it all by myself as long as I have my floaties on. I just love swimming too!!! I jump off the step and swim to my mom :) I have a neurologist appointment Monday in NOLA so I'll let you know what she says. I think she is going to be impressed. Keep praying for me to continue to get better. Love you all, Jadon
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Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.