Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Monday, April 30, 2012

Neurologist appointment

My appointment went great today. My neurologist said I look great and am doing wonderful. I did show off my speech a little for her. I said Diego when she brought me a Diego sticker and asked me who it was. I said it right away. I also told her bye without any problems. I was not happy to be in a hospital and was so happy to tell her bye. I started crying as soon as I realized where we were. I fussed most of the time there. I was scared they were going to hurt me. Mommy kept telling me they weren't but I still had anxiety. Other than that we had a very great visit and we do not have to go back until August. I'm very excited about this. I use to go ever month or two. Mommy said she will miss seeing my doctor. She has become part of our family and has gone out of her way to help me and my family. So not much info today at the appointment which is a good thing. It means I'm doing GREAT!!!!!

No comments: