Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Friday, April 6, 2012

A much needed update!!!


Wow so sorry its been so long since I updated you. Let me start off by saying thank you so much to everyone who came to my run for recovery. It was a great day and I had lots of fun. I loved getting to see each of you. Thank you again for everything you have done for me. I'm leaving a picture of me crossing the finish line. It was the best part of the day!!!! I'm still doing amazing well and still not having any seizures!! I posted the video of me walking for you all to see. I still have a long way to go before I can do it all by myself but its a start and we are very excited about this. Of course my speech is still improving drastically everyday. I can say so many words that my mom has lost count. It's definitely over 65. I'm starting to say phrases such as throw it back when I want you to throw me the ball. I can say sweet tea when I want some to drink. Yesterday I was saying ma ma bad bad. LOL My speech is slurred and it is kinda hard to understand me but random people are beginning to understand me. WOW!!!!The slurred speech is just muscle weakness. The stronger I get the more clear my speech will get. I did have a little set back this weak. I had the beginning stages of pneumonia. Luckily my mommy brought me in soon and we caught it quickly. I'm much better now and am gaining my strenght back. I'm also having some problems with my AFO so I haven't been walking the last couple of days. We have an appointment on Monday to get it fixed. Hopefully we can get it fixed and I can start practicing my walking again. I hope everyone has a great Easter. Remember to celebrate what Jesus did for us that day on the cross. I can't imagine the pain he suffered and he did for you and me. He loves us that much!! I love you all, Jadon


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