Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Friday, December 3, 2010
Seizures, seizures, and more seizures
I don't have much to report. My seizures haven't gotten any better. I'm having them during the night again. I'm also having many intense ones all during the day. We don't know an exact amount, but we do know its well over 100. It's just impossible to count them every day. My mommy is off of work for the weekend so she is going to get a good count on them. All I can say is please continue to pray for me. My mommy called our neurologist and they said there isn't anything that needs to be done right now. We just have to wait. Well waiting is horrible, especially when your having seizures all day and all night. Thank you all very much for praying for me. It's the only thing that keeps us going.