Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Friday, June 24, 2011

Seizures suck!!

The title explains it all. Yes seizures suck. They are so unpredictable. Mine are so unpredictable that we don't know what meds work and what meds don't work. My mommy and daddy think I might just do better with no meds. That way I won't have to fight against side effects and seizures. I don't know the answer. I had two great days after the lamictal increase and then bam my seizures are right back to normal. So now the question is was it the lamictal increase or did I just have two great days. Who knows. We will continue to increase the lamictal for the next month. So yet again we just wait and see. It's going to be interesting what the doctors say in Boston. Mommy has already started getting things ready. I require alot of planning. Please continue to pray for me. The great news is that I'm making great progress this summer :) We are very thankful for this and we thank God everyday for what he is doing in my life. We just wish we could get control of the seizures. It is horrible to watch me have so many everyday.

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