Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Friday, March 2, 2012

5k run/ Yearly evaluation

March has arrived and I'm very excited about this month. On March 24 they are having a 1 mile fun run/5k run for me. It's going to be so much fun. Ms. Louisiana will be there. Chris Gray will be there to play. We have 2 praise bands that will be playing. We also have dancers from the local dance studios that will be performing. There will be a petting zoo for the kids and inflatable bounce houses. They will have food for lunch and awards for the winners of the races. It's going to be a fun day. I can't wait to get to see everyone. So if you have been keeping up with my story and never met me, it would be a great time to get the chance. It's going to be a great day to celebrate with my friends and family my progress. You can read more about the race and print your registration forms at http://jadonsrunforrecovery.com/ Don't forget that forms are due by March 10th. We will accept forms the day of the race but we can not guarantee that we will have a shirt for you. It's also cheaper if you go ahead and send the form in. So get your forms in soon and I can't wait to see you there. I will be participating in the 5k race. My mommy is going to push me and my brother. When we get to the end she is going to let us get out and cross the finish line. I can't wait!!!!!!
As for me, I'm still doing amazing. I can walk in my walker again. My mommy wrapped my hand around the handle and I took off. I had my yearly evaluation with early steps today. I did amazingly well. The evaluator has been evaluating me since I first started and she was totally amazed. I was matching colors, pointing to objects that she said aloud, stacking blocks, putting rings on a stick, matching animals, pointing to my feet and others feet, and following directions. I was doing some 3 year old cognitive skills. So my cognitive skills were great which is awesome. My social skills were amazing also. I love others and interact with others. Of course my motor skills and speech skills are behind but those have been the hardest things for me to do. Though they are behind, I have made huge improvements since my last year's evaluation. We will not know the exact results until the end of the month but hey its much better than we thought. We are super excited about how well I did. I have done nothing but progress since my surgery and I proved it today!!!!! Thanks you so much God for everything you have done for me!!!!!!! Here is a video of me walking. I hope you enjoy it!!

Please continue to pray for me. Your prayers are helping me recovery. We leave 3-11-12 to go back to Detroit for my checkups so please begin praying for that. The two test that I will have done while there are very important.

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