Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Wednesday, January 12, 2011
We finally got a PT!!!
So we finally got a PT. Of course we have to do the paper work with early steps before she can come see me. We are very excited about this. We had a wonderful PT several months ago but she got sick and was unable to service me. We have missed her tremendously. Now we finally got a new one. My seizures are between 60-80 spasms a day now. So not much change but as long as I'm not increasing we are ok with this. It's still way to many spasms to be having a day. We have a neurologist appointment tomorrow afternoon. I will let you know what she says. Please pray my doctors and I as we continue on my journey. I'm a fighter and I'm not giving up yet. Love you all, Jadon