Potty Training 101

My mom has been potty training me for a week now. I am proud to say that in that week I only had 4 accidents. 2 were #1 and 2 were number #2. For the last 3 days I have been going number 1 and number 2 on the potty with 0 accidents. This includes nights as well. I haven't had any accidents at night all week. I even get out of the pool when I have to go. My mom isn't ready to say I'm fully potty trained just yet, but wow I'm pretty close. My family can't believe how well I'm doing with this. It's been much easier than they thought for sure. Me I don't really see the big deal, when I have to go I just tell them. You have to remember this time last year I wasn't walking 100 percent of the time and one year later I'm not only walking and running but now I'm almost potty trained. Wow isn't that unbelievable!!! Thank you God for what you have done and continue to do in my life!!!!

More good news!!!!

It's officially summer and I am loving every minute of it. I get to spend everyday with my mommy and brother Jacob. We go swimming almost everyday. I love it and its great exercise for me. We are really focusing on getting my right hand to work better this summer. I'm trying really hard but its just not cooperating. The good news is I have a great attitude about it and I always try. I will get it eventually. My mom is also working on potty training me this summer. We are on day 3 and I haven't had an accident in two days. I was able to go to wal mart, master chef, and to Jacob's t-ball game in my big boy undies. I'm really excited about being able to wear my undies and my family is very proud of me. We are hoping by the end of the summer I will be able to go to school fully potty trained. Speaking of school we received a letter in the mail today saying that I was selected to participate in the PreK program at Loranger Elementary. We are very excited about this. I will be in a regular education prek class. Right now I'm learning so much from my peers so we know this is going to be a great thing for me. As always thanks for praying for me. I'm doing fantastic!!! Love, Jadon

Great News!!

My mommy talked to my neurologist in Detroit today. They decided that I do not have to go back to Detroit this summer. I'm doing so well that he said we can wait another year before we go back. The main reason we were going back was to let him evaluate my hand. I'm still not using it as much as we would like but I can use it and will use it when I want to. So we will wait another year and see how I'm doing then. We just aren't ready for surgery yet and feel like we should just wait. In the meantime my neurologist said to let him know if we have any problems in the next year. Thank you all for your prayers. We are very excited that I'm doing so well and can skip this trip.

Phenomenally Well

So I've been off my medicine for almost 3 months now. I continue to do great and I'm still progressing along. A few weeks ago I was in my Uncle Mark and Aunt Laurens wedding. I walked down the isle with my big brother and did exactly what I was suppose to do. Mommy was so proud of me for being a big boy like my brother. I had my evaluation for pre k a few weeks ago. I did better than my mom thought I was going to do. The lady asked me my name and I said Jadon, she said Jadon who? and me with my funny self said Jadon bug a roo. LOL That's what my mommy calls me. She then said that's not your last name what is your last name Jadon what and I decided I should tell her Pailet. So I was able to tell her my first and last name and my age. I was able to identify every picture she ask me to identify except a leaf. It was a funny shaped leaf and it didn't look like the leaves around here for sure. There was a picture of a girl at the bottom of some stairs and a boy at the top of those same stairs. The lady asked me what the girl was doing and I said going up the stairs. She then asked me what the boy was doing and I said going down the stairs. Yeah I'm a smarty pants. I also had to identify some body parts and I was able to identify them all. They were tricky ones like the heels of my feet, my back, my chest, and my chin. I still got them all right. She asked me things like what does an airplane do and I said fly in the sky and what do you do with a book and of course I said read it. I also had to look at a picture and say the sentence that the tester told me. And guess what, I was able to do it. So pretty impressive. These are a few things I had trouble with. I was able to draw a straight line but not a circle. I was able to identify 2 colors and not 4. I'm having trouble with my colors for some reason. We are actually going to check to see if I may be color blind. I also couldn't hop on 1 foot or jump. If you really think about most the things I had trouble with it was motor related. That is because the right side of my body doesn't work as well as it should. Oh and remember I haven't been walking a full year yet. So basically I'm doing phenomenally well. I'm asking that you all pray I get into prek. I really need it for the social aspect and I'm ready cognitively. Mom is a little worried I'm not because I did well on my test and its income based and since my mommy and daddy both work our income is higher than most. I do get points for having an IEP and they have to take 2 kids with special needs so I'm hoping I will be one of the 2. My speech therapist at school also did a speech evaluation on me and I scored 2 years 10 months receptively and 2 years 9 months expressively. My age is 3 years 8 months. If you remember my expressive was much lower than my receptive and it has caught up!!!! WOW before long I'll be on level for speech I'm catching up in time :) Other than that we are just waiting to get our date to Detroit. We should have our final date by the end of next week. Thanks for praying for me God continues to amaze us with his healing powers. I've heard people say you don't know how much God has blessed you and all mommy says is YES We DO!!!! Watching your child suffer for two years and not being able to help them is horrible and something my mom doesn't wish upon anyone. We are grateful everyday for the miracle God has done in my life!!! I'm attaching a cute video of me running in my shoes without a brace on. You can just see the joy everywhere!!!!

Epilepsy Awareness!!

Epilepsy awareness day is tomorrow and I'm asking all my friends and family to wear purple to support epilepsy awareness. I'm so thankful that I no longer have epilepsy but as all of you know epilepsy has left its scar on me. I will never have 100% function of my right hand because I no longer have my motor cortex that controls movement on that side of my body. This is all side effects of my brain surgery that I had to have to save my life. We will never complain because we are truly grateful that I'm no longer having seizures daily. Oh and I can tell you that I give the best one handed hugs around :) I pray that one day there will be a cure for epilepsy so that none of my friends have to suffer another seizure. Until then I will do my best to tell my story and to spread epilepsy awareness. Thank you all so much for your support. I love you all!!! Jadon

No meds and doing awesome!!

Well I've been off all my seizure meds for a week and half. I continue to do great. I'm actually progressing even more since we started the wean. The main two areas that have improved since being off the meds are my attention span and my speech. My attention span has slowly been getting better but now that I'm off the meds I can attend to a task for longer periods. My speech has also improved greatly in the past 3 weeks. I'm now saying sounds more clearly, I'm using pronouns, I'm saying longer sentences, and I'm able to verbally tell you what I did at school and therapy. A few other new things that I'm able to do now is I can do knob puzzles, I can stack 10 blocks, I can identify a circle, square, and triangle, and I can go get objects that are the color you tell me to get. I can count to 20 now and I know the letter sounds for a,b,c, and d. Don't forget I'm only 3 and I had hundreds of seizures a day for almost 2 years so for me to be doing these things is so amazing!!!
Many of you knew that I went on my grant a wish trip over mardi gras break. I had so much fun with my family. It was a much needed get a away for my entire family. I want to thank the Louisiana State Police for granting my wish and sending us to Walt Disney World. My mommy made a video that I'm attaching in case you want to watch it. I hope you enjoy it and thanks for always praying for me!! Jadon

Neurologist Appointment

I had an appoinment with my neurologist today. I haven't seen her since September. She said I looked great. She understood almost everything I said. She was very impressed with how well I was speaking. She said the things I'm saying are very intelligible. The problem is an articulation problem but she is NOT concerned and said I will eventually get it. She said I've only been talking for a year now so its impressive that I'm speaking so well. She also said that I do not have to have any more test for a long time.Praise God!!! She was glad to hear that I'm finished with my meds and she thinks I'm going to be just fine. We have to go back in 6 months which is around the same time I have to go back to Detroit. So for the next 6 months I'm going to enjoy not having to go to the doctor, not having to take meds, and not having to have any bloodwork or test done. Please pray that I will continue to do well off the seizure meds and please thank God for what he has done in my life. We never thought there would come a day when I didn't have to take meds and just look at me today. A true miracle:)