Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Thursday, March 3, 2011

The past couple of days.

My neurologist called first thing Wednesday morning. She didn't want to increase my vimpat. She wanted to increase my banzel. So that's what we did. The past two days haven't been the best for me. Yesterday my mommy had to come home from work. I was crying, having seizures, and just miserable. We went to the pediatrician and I have a nasal and throat infection. She put me on antibiotics. She also gave me a cream to help my rash that I just can't seem to get rid of. My seizures have not been good either. I'm having about 80 a day. I have done a little better this afternoon. My mommy has only seen about 10 small spasms. I've also been saying da da da all afternoon. So hopefully I will get to feeling better and my seizures will go down. I will keep you update. I love you and please continue to pray for me.

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