Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Thursday, October 14, 2010
Still improving :)
My seizures continue to get better. They are still not controlled but they are better. I'm only having them when I go to sleep, when I wake up, and then just a few here and there. I'm also sleeping much better. In fact, last night I only woke up 1 time. I had 15 spasms and then went right back to sleep. That is a significant decrease at night. I'm also still only taking two naps a day. I sleep about 2 hours in the morning and 2 hours in the afternoon. This makes us so happy :) We will increase the banzel again tonight. Please continue to pray for improvement. Your prayers are working. We are praying that once I get on the full dose we will have control of these spasms. Thanks for caring and praying, Jadon