Neurologist appointment

My appointment went great today. My neurologist said I look great and am doing wonderful. I did show off my speech a little for her. I said Diego when she brought me a Diego sticker and asked me who it was. I said it right away. I also told her bye without any problems. I was not happy to be in a hospital and was so happy to tell her bye. I started crying as soon as I realized where we were. I fussed most of the time there. I was scared they were going to hurt me. Mommy kept telling me they weren't but I still had anxiety. Other than that we had a very great visit and we do not have to go back until August. I'm very excited about this. I use to go ever month or two. Mommy said she will miss seeing my doctor. She has become part of our family and has gone out of her way to help me and my family. So not much info today at the appointment which is a good thing. It means I'm doing GREAT!!!!!

Great Days!!!

My days have been great. I'm learning so many new things. I talk all day long. I repeat everything I hear. I'm starting to label things. A few things are grass,sky,bed,ball,outside,all family names,eat,drink,sock,pow pow(for gun),key,bath,egg,chick, and many more. I say tv when I want to watch tv. I say pee pee and poo poo when I go to the bathroom. I answer yes and no questions correctly. You can actually have a conversation with me. It's unbelievable. I have learned the color blue and say blue when you ask me what color is this. We are working on red,yellow, and green now. I say yellow most of the time correctly but don't have it mastered just yet. I can consistently point to my head,ear,belly,toes,eyes,nose and also say those parts while pointing. I can say three animals sounds when asked correctly and also say the animals name. I use to say the same animal sound for every animal but not any more. Of course I can repeat any animal sound my mommy says but I know 3 independently. I can now answer who is this questions and what's that questions. I also say what's that when I want you to tell me what something is. I'm just amazing my mommy and daddy with all my progress. It's totally amazing that I'm not even 4 months post surgery and I've made so much progress. God is really showing us just how powerful He is. He has given me a new life. My motor skills have kinda been on hold the last week or so. I can take steps but I'm scared to do it. You have to remember I'm 3 feet tall trying to learn to walk so I have farther to fall so it's kinda scary. I will get it though and my mommy is not worried at all. She said just whenever I'm ready. I did learn to get off the couch this week which makes my mommy happy because she doesn't have to get me off all day long :) We have decided to cut back on some of my therapies. I will not have therapy on Mondays and Wednesdays anymore. It's too much therapy and I'm getting overwhelmed and not wanting to do therapy. It's ok because my mom does therapy with me all throughout the day and I don't even realize it. One of the best therapies I'm doing right now is swimming with my mom. I can do it all by myself as long as I have my floaties on. I just love swimming too!!! I jump off the step and swim to my mom :) I have a neurologist appointment Monday in NOLA so I'll let you know what she says. I think she is going to be impressed. Keep praying for me to continue to get better. Love you all, Jadon
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A much needed update!!!

Wow so sorry its been so long since I updated you. Let me start off by saying thank you so much to everyone who came to my run for recovery. It was a great day and I had lots of fun. I loved getting to see each of you. Thank you again for everything you have done for me. I'm leaving a picture of me crossing the finish line. It was the best part of the day!!!! I'm still doing amazing well and still not having any seizures!! I posted the video of me walking for you all to see. I still have a long way to go before I can do it all by myself but its a start and we are very excited about this. Of course my speech is still improving drastically everyday. I can say so many words that my mom has lost count. It's definitely over 65. I'm starting to say phrases such as throw it back when I want you to throw me the ball. I can say sweet tea when I want some to drink. Yesterday I was saying ma ma bad bad. LOL My speech is slurred and it is kinda hard to understand me but random people are beginning to understand me. WOW!!!!The slurred speech is just muscle weakness. The stronger I get the more clear my speech will get. I did have a little set back this weak. I had the beginning stages of pneumonia. Luckily my mommy brought me in soon and we caught it quickly. I'm much better now and am gaining my strenght back. I'm also having some problems with my AFO so I haven't been walking the last couple of days. We have an appointment on Monday to get it fixed. Hopefully we can get it fixed and I can start practicing my walking again. I hope everyone has a great Easter. Remember to celebrate what Jesus did for us that day on the cross. I can't imagine the pain he suffered and he did for you and me. He loves us that much!! I love you all, Jadon

Tomorrow is the day!!

Tomorrow is my 5k run. I'm very excited and can't wait to see everyone. If you can please come celebrate my progress with us. You may even get to see me do my new trick. Yes I started taking steps yesterday. I can take about 5 steps. I get so excited and start going to fast. I have to learn to slow down a little and then I will be walking everywhere. My mommy and daddy are so proud of me. They never thought that i would progress this fast after surgery. I'm only 9 weeks post surgery and I'm saying about 50 words. The best part about me talking is I'm starting to use the words without my mommy having to say it first. I'm also saying people's names when I see them. Today we stopped at my papa's funeral home and as soon as mommy got me out the car I was saying papa. I knew he was in that building. I'm doing things that my mommy and daddy didn't know if I would ever be able to do. It's amazing!!!! We thank God everyday for what he has done. I hope to see you all tomorrow. If you haven't registered don't worry you can register in the morning. See ya in the morning, Jadon
For more information and times visit jadonsrunforrecovery.com

Detroit Results!!

I had a GREAT trip to Detroit. We did not get to stay at the Ronald McDonald House this time because of our flight time. We stayed at a hotel by the airport which was alot of fun. They had a swimming pool and I got in it everyday. I left you a picture of me swimming. I just love the water!!! I received AWESOME news in Detroit. The first test I had done was a CT scan. I saw my neurosurgeon after the test. He said that my CT looked great. I didn't have any fluid build up. This is great news because it means I do not need another surgery!!!! The neurosurgeon said I'm doing great and I will continue to get better. The next day I had my 2 hour EEG. I did fairly well while they put the leads on this time. I usually scream the entire time. They swaddled me up( see pic) and I actually did better this way. Once they hooked me up is when it began. I did not want the leads on my head. I keep pulling at them the entire time. I finally fell asleep for a little while but I didn't sleep long. I then woke up and was back at trying to get it off. It was a long 2 hours. The great news is that my EEG was normal. YES I went 2 hours without having a seizure while hooked up to EEG. I can remember a time when they needed me to go 2 hours for a test. They tried for 3 days and I never went 2 hours without having seizure activity. So yes we are very excited that my EEG was normal. That means I have gone over 2 months without having a seizure. It unbelievable but with the help of God and the doctors at Detroit Children's Hospital, I have been given a new life. I can't tell you how grateful I am for meeting this neurologist that saved me from these seizures. Him and his staff are totally amazing. I can't say enough about how awesome they are!!!! After my EEG we met with my neurologist. You know Dr. Rockstar!!! He was very pleased with my progress. He said I'm doing amazingly well. I gave him a high five with my right hand. I said some words for him. I even reached out for him to hold me and he took me right away. You see I told you he was AMAZING!!! He said that I am doing extremely well but that we haven't seen anything yet. He said just wait and watch what I'm going to do. It's going to be great. He talked about me going to school and that I may even be able to go to college one day. He said we need to have high expectations so that I can reach my maximum potential. He said that since I haven't had any seizures so far it is unlikely that we will ever see another seizure again. Can you believe that? No more seizures. Words can't describe how awesome we feel. I have to stay on my seizure medicine as a precaution for a year. If I'm still not having any seizures next January, he will take me off my last seizure medicine. By the way I'm only on 1 very small pill so I really don't mind taking it. We will have to go back to Detroit in July. At that time they will do a MRI with DTI testing which will show exactly what has transferred to my right side. I want to thank each and everyone of you for your prayers. I do not believe we would be where we are today if we didn't have everyone praying for me. Thank you for being a part of the miraculous experience. Please keep praying for me and I can't wait to show you what I'm going to do next. Oh and by the way I'm now saying over 40 words. Yes I know unbelievable!!!!

2 months seizure free.

Today makes two months since my surgery and two months of no seizures. I'm so happy that I'm not having seizures anymore. My life is so much better. I'm learning more and more new things everyday. I'm so thankful for what God is doing in my life. I leave in the morning to go back to Detroit. I will have a CT scan on Monday and then an EEG on Tuesday. I have an appointment with my neurosurgeon Monday and with my neurologist Tuesday. I come home Wednesday. Please say some extra prayers for me. These two test are really important. Monday's test will show if I have any fluid build up. They don't expect that I will but if I do I will have to have another surgery. Tuesday's test will let us know if I'm having any spiking or slowed brain waves. We do not think I am but this will let us know for sure. Please pray that both test will be normal. I'll keep you updated while in Detroit. I cant wait to show my doctors all my new tricks!!! Love ya, Jadon

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5k run/ Yearly evaluation

March has arrived and I'm very excited about this month. On March 24 they are having a 1 mile fun run/5k run for me. It's going to be so much fun. Ms. Louisiana will be there. Chris Gray will be there to play. We have 2 praise bands that will be playing. We also have dancers from the local dance studios that will be performing. There will be a petting zoo for the kids and inflatable bounce houses. They will have food for lunch and awards for the winners of the races. It's going to be a fun day. I can't wait to get to see everyone. So if you have been keeping up with my story and never met me, it would be a great time to get the chance. It's going to be a great day to celebrate with my friends and family my progress. You can read more about the race and print your registration forms at http://jadonsrunforrecovery.com/ Don't forget that forms are due by March 10th. We will accept forms the day of the race but we can not guarantee that we will have a shirt for you. It's also cheaper if you go ahead and send the form in. So get your forms in soon and I can't wait to see you there. I will be participating in the 5k race. My mommy is going to push me and my brother. When we get to the end she is going to let us get out and cross the finish line. I can't wait!!!!!!
As for me, I'm still doing amazing. I can walk in my walker again. My mommy wrapped my hand around the handle and I took off. I had my yearly evaluation with early steps today. I did amazingly well. The evaluator has been evaluating me since I first started and she was totally amazed. I was matching colors, pointing to objects that she said aloud, stacking blocks, putting rings on a stick, matching animals, pointing to my feet and others feet, and following directions. I was doing some 3 year old cognitive skills. So my cognitive skills were great which is awesome. My social skills were amazing also. I love others and interact with others. Of course my motor skills and speech skills are behind but those have been the hardest things for me to do. Though they are behind, I have made huge improvements since my last year's evaluation. We will not know the exact results until the end of the month but hey its much better than we thought. We are super excited about how well I did. I have done nothing but progress since my surgery and I proved it today!!!!! Thanks you so much God for everything you have done for me!!!!!!! Here is a video of me walking. I hope you enjoy it!!








Please continue to pray for me. Your prayers are helping me recovery. We leave 3-11-12 to go back to Detroit for my checkups so please begin praying for that. The two test that I will have done while there are very important.