Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Saturday, March 27, 2010


Sorry I haven't updated in a few days but its been a rough couple of days. I am still having spasms. I am having about 20-25 a day. They are not increasing or decreasing just staying about the same. My mommy starts lowering my dose of steriods tomorrow. I will get about 1/4 of the medicine that I was getting. I'm hoping that I will start to feel better once we lower the dose. My mom will slowlydecrease the dose for the next 12 days until I am off completely. Thats when I will have my next EEG and we will decide what to do from there. My doctor said there is still time for me to stop having these with the next 12 days. I sure hope they stop. I'm tired of being sick. I did get to stay with my Mar most of the day. My mommy had to go to Covington and then she brought Jacob to a birthday party. I loved getting to stay home. I even smiled and laughed some today. My mommy and daddy bought me a new infant carrier today. I love it!! It is much more comfortable than my old one. It will hold me until I'm 35 pounds. It is also longer so my legs have much more room. I posted a picture so everyone can see how much more comfortable I am in my new seat. Thanks everyone for continuing to pray for me. I am one special little boy who is loved very much!!!

2 comments:

Anonymous said...

Jadon,

Our prayers are continous for you. We know from our healing father that "we can do all things thru Christ who strengthens us". (Phillipines 4:13)

We are praying for your mommie and daddy as well.
We are praying for their strength and endurance.
Please know that we love you so much.

Oh and by the way we love the music you selected for your website. Casting Crowns is an awesome group. I love "Praise you in the Storm".
We must praise Him in every storm. He will always see us thru.

God Bless you and mommie and daddy. Love The Campo's

TabbyDupas said...

I hope you start feeling better soon jadon. There are alot of people out there praying especially for you. We love you very much.