Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Tuesday, March 16, 2010
We are home!!
So we made it home from childrens around 5:00 today. I'm back in Amite but I still can not stay at my house. My older brother Jacob is sick and still has fever. My daddy is staying with him and I am staying at my Papa and RaRa's house with mommy. You see I can not get sick because I have a weak immune system right now. Hopefully tomorrow I will be able to stay at my house. My mom is giving me all my medicines now. I know its hard for her to give me those ACTH shots so I don't cry to bad for her. I have many many doctors appointments coming up. I have to have blood work done every Monday and I have to have my blood pressure checked every Monday, Wednesday, and Friday. I also have another EEG next Tuesday at Childrens Hospital. We will get to see my neurologist that day too. Ok well I gotta go night night so I will keep you updated. Please continue to pray for me. I love you all!!!!!