Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Tuesday, March 16, 2010

We are home!!

So we made it home from childrens around 5:00 today. I'm back in Amite but I still can not stay at my house. My older brother Jacob is sick and still has fever. My daddy is staying with him and I am staying at my Papa and RaRa's house with mommy. You see I can not get sick because I have a weak immune system right now. Hopefully tomorrow I will be able to stay at my house. My mom is giving me all my medicines now. I know its hard for her to give me those ACTH shots so I don't cry to bad for her. I have many many doctors appointments coming up. I have to have blood work done every Monday and I have to have my blood pressure checked every Monday, Wednesday, and Friday. I also have another EEG next Tuesday at Childrens Hospital. We will get to see my neurologist that day too. Ok well I gotta go night night so I will keep you updated. Please continue to pray for me. I love you all!!!!!

7 comments:

Watts Family said...

Jadon,

Hi, buddy. Hang in there. You have the best Mommy in the world and she is going to do everything she can for you. We love you and will be praying for you! Remember, God has a special plan for each and every one of His children. He promises so in Jeremiah 29:11 and His Word DOES NOT return void.

Hugs and Kisses,
Jude Watts

Anonymous said...

Hey Man!

We are thinking about you and we love you! You are in our prayers every night. Tell your mommy and daddy we are here if they need anything.

xoxo,
The Christmas'

Anonymous said...

We are thinking about you little Jaydon and praying that all of this will soon be a thing of the past! You are a strong little dude! Your momma is a beautiful person inside and out, and those big boy smiles are what keep her going!

And Noah can't wait to have a playdate with you! So as soon as you feel up to it, tell your momma to give me a call:)

With all our love,
Rae, Matt, Owen, Isabella and Noah

Kathy said...

James and I just read your new blog, and are so glad you are back in Amite. We are keeping you in our prayers and like you are trusting God will get you through all of this. Wish we were there to hang out with you and your mom while you are going to all of those doctor appointments! We love you, your mom, your dad, and Jacob!

Anonymous said...

Just wanted to let you know I just said a prayer for yall. Just keep the faith and believe you are healed and healthy.

jennifer said...

You are in our thoughts little man, tell your mom and dad that we are here if they need us and tell your brother to feel better soon!!

Anonymous said...

We are praying for all or you. Stay strong and keep your faith. God is good all the time.
Shannon Navarro