Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Friday, July 2, 2010
Finally some good news!!!
I have been doing really good this week. The increase in topamax has help decrease my seizures. I am only having about 50 a day now. I am waking up and having a few during the night. My mommy and daddy think the decrease is also due to not taking the clonazepam. We are not doctors but it seems like the more they increase that the more I have. This makes since because I have seizures when I am tired and the clonazepam makes me tired. Good thing is my neurologist said no more clonazepam ever. I am also doing better physically since I have been off clonazepam. I am even learning to do more things :) If you look at the picture you can see me eating a cookie all by myself. I was so proud of myself and so were my mommy and daddy. If you look real close you will notice I am eating with my right hand. This is the hand that I don't like to use. So this is great progress for me. I also rolled over from my back to my stomach. I am holding on to my toys more and I am banging on toys. I am just amazing everyone with my progress. Guess what my medicine from Canada came in today. It just shipped Tuesday and we got it in already. So 5-10 days only took 3. Yay!!! So my mommy just gave me my first dose. I will get another dose tonight. The neurologist said we should see results within 2-3 days. We are praying that this will be my magic medicine to stop these seizures. I will keep you update. Everybody have a great Fourth of July weekend. I love you and please continue to pray for me!!!! Every new thing I do is just proof that your prayers are working. So thank you all so much!!!