Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Sunday, July 11, 2010

Fun weekend!!


I've had a busy and fun weekend. I went to two birthday parties in one day. I was such a good boy. I then got to go help daddy bale hay. The picture above is me in the hay. I loved it and kept picking it up and shaking it. After that I played with my friend Connor. Today I ate lunch at my Paw and Mar's house, went to see my Papa and RaRa, went swimming, and then hung out with MiMi. So you can see I was busy. I have been playing, playing, and playing. I am using my thumbs. I used to curl them up and just use my other four fingers but now I'm using them all. Since I'm using my thumbs I can grab big objects now. This makes me so happy!!! I will grab almost anthing you put close to me. This includes the remote, mommy's phone, the computer, and you know all those fun things that mommy and daddy play with...lol As far as my seizures I'm still having anywhere from 60-100 a day. I have a neurologist appointment Tuesday so I will update you on what she says. We are looking at going to see an epilepsy specialist in September. I will keep you all updated. Please pray that I continue to develop. This is so important for me right now.

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