Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Monday, September 13, 2010
So we heard back from Boston today. Our application for housing was approved. We will be staying at the House of Autumn which is right across the street from the hospital. We will be able to walk there from the hospital. We did have a little issue with the flights. We will be flying into Boston on the 2nd instead of the 3rd. It is going to save us $450 by flying in a day early. Mommy and daddy said it will give us a day to go see some things in Boston. We also got a call from the hospital today. They got all my information for my MRI testing. They said we should be getting another phone call within the next few days with all the final information. My seizures continue to increase. They are also getting stronger. It's still the myoclonic jerks but they are more intense. Mommy won't call my neurologist because their answer is always clonazapam which is worse than the seizures. Please pray that I can make it 3 more weeks. Pray that these seizures will stop increasing. I am getting 4 new teeth so maybe that's why I'm having more seizures. Who knows with these crazy things. Please keep praying and I will update you later in the week :)