Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Tuesday, March 23, 2010

EEG results

Well my EEG was still abnormal but it was extremely better. They actually saw some acitivity that was normal. My neurologist said on a scale of 1-10. 1 being normal and 10 being the worst that my first EEG was a 10 and the one I had today was a 3. She was very pleased with the results. She said I am doing really well. I only had one somewhat of seizure activity but it leveled off and didn't cause me to have one. They could also see some background to my brain wave patterns. That is really awesome my doctor said. The first time they looked at my EEG they could not distiguish between the back and the front activity of my brain. Today they could!!! Her only concern today was the way I am holding my right hand. My mommy has to watch it and see how much I am using it. She said don't worry about it because the steroids make me do silly things, but they still want to watch it. So please pray that nothing is wrong with my hand. I have another EEG in 2 weeks to see how I am doing then. So for the next 2 weeks I will continue to have blood work on Mondays and blood pressure checks Monday, Wednesday, and Friday. Oh and they still haven't received my DNA test back. It just takes a long time but the doctor said it should not be much longer. As you can see God is slowly healing my brain. Please continue to pray for me and pray that this medicine continues to work!!! I do have to brag a little bit. I had two people tell me what a good baby I was today. One of them was my neurologist. They said that most babies on ACTH cry all day long and I am just a little fussy. They said I must be a good natured baby :)

3 comments:

Kathy said...

Great news, Monica! And, Jadon, I am not a bit surprised to hear that you are being such a good boy on those meds. You have been very brave throughout all of this. Love to all.......

Anonymous said...

So happy that you are feeling better; we are continuing to pray for all of you. God is in the business of miracles and we are witnessing one in you. All of you stay strong, keep your faith strong and He will shine through all of you.
Shannon Navarro

Julie G'sell said...

Thanks for continuing to share with us. I am so happy about the progress.
"Little by little, one walks far".