Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Thursday, August 12, 2010
Lots of seizures :(
I have been having lots of seizures. They are getting worse everyday. I had about 100 yesterday. I woke up last night and had about 40 and have had several today. Mommy called my neurologist and she said to stop the trileptal(the new medicine). The medicine is actually increasing my seizures instead of decreasing them. Sometimes the meds do this. I have to stay on my keppra, topamax, and clobazam. We have an appointment at childrens on Monday so we will decide what to do then. I will update you and let you know if my seizures decrease tomorrow. Right now I'm going to get ready to cheer for the New Orleans Saints :)
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