Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Wednesday, April 7, 2010
We just received some awesome news!!!!!
So the specialist just read my EEG and said the following. My background is normal, my sleep patterns are normal, and there is no sign of hypsarrythmia. The sign of hypsarrythmis is what originally diagnosed me with IS. On a scale of 1-10 I am 1.5 Hooray!!!!I"m so excited. My mommy and daddy are so happy we are witnessing a miracle. The only thing wrong with my EEG is there are still spikes of seizure activity. This means I'm either having other types of seizures, my infantile spasms are slowly coming back, or they are stopping and just haven't completely stopped. Only time will tell. We did get my genetic test back and it was normal. Now all my test are in and all are normal. This is a big sign of relief for my family. Please continue to pray that my seizure activity stops and that I continue to develop.
Subscribe to:
Post Comments (Atom)
1 comment:
What awesome news! Wow- the power of prayer! So glad things are looking up for ya'll!
Post a Comment