Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Monday, May 17, 2010

Baby dedication, blood work, and therapy

My baby dedications was great yesterday. Thank you FBC for making it so special for me. After the service I got to go eat with my family. It was lots of fun. I went to my pediatrician today. My blood pressure was good. I will find out the results of my blood work Wednesday. Hopefully my carbon dioxide level will be back to normal. It took them 4 times before they were able to get blood. It was horrible my mommy and I were both crying before it was over with. After that my mommy made me go to PT. I did not want to go at all I was tired. I fussed during therapy but I did show them how I can sit up. They were very proud of me. They said my upper body muscles are getting stronger. I'm still being pretty good for mommy. I just want her to hold me all day. Good thing I have lots of family that love me who can hold me. Guess what today is my Uncle Marks birthday so we are going to eat with him. Happy 21st Birthday Uncle Mark!!! I have PT tomorrow so I will let you know how it goes. I will also update you when I get my blood work back. I am having about 20-30 spasms now. A little less but we need them to go down alot more. Other than that I am hating these shots. I start crying as soon as mom grabs my leg now :( Please pray for me. Love ya, Jadon

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