Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Sunday, May 30, 2010

My first night away from mommy!!

Well I had to stay with my Mar and Paw last night. It was the first time I have stayed away from my mommy since I was born, except for the 2 nights I spent in the NICU at birth. I had to stay with them because my brother is sick. He is running a very high fever and my mommy doesn't want me to get sick because I'm still on these steriods. Well I did very good. I woke up around 1:30 and played until 3:30 and then went back to sleep. I do this every night though. I just like to get in some play time in the middle of the night. LOL!!! My mommy bought me some new shoes to wear. My PT wants me to wear some walking shoes. I'm not ready to walk yet but the shoes will help with the way I hold my feet. I keep wanting to turn them in so we are working on keeping them straight. I actually like my shoes. I usually cry when my mom puts shoes on me but I will wear these for hours at a time:) Guess what tomorrow is my last day to have to do weekly blood work. I can't tell you how excited I am. I also get my last steriod injection Wednesday. I hope everyone has a good Memorial Day and I will update you later this week. Please continue to pray for me and pray that I don't get sick. This would be very bad. Love ya, Jadon

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