Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Monday, May 24, 2010
It's been a very long day. I had my weekly blood work done this morning. Thank goodness it only took them two sticks this time. My blood pressure was great. After that I went to Target and JcPenny with my mommy. I was such a good boy. I sat in my stroller the entire time. Then it was time for PT at North Oaks. I did ok. I was a little fussy but I worked real hard. When we got home mom went to Big Bad Bens. Oh I did not like that at all I screamed. Mom said she would never go o the car wash with me again. Boy am I glad. We did stop by and see PaPa afterward so I felt much better when we left. Well I have a busy week. I have speech therapy tomorrow, blood pressure check Wednesday, OT and PT Thursday, and a meeting with early steps Friday morning and then its off to Childrens Friday afternoon. I'm still having the same amount of spasms so we will see what my neurologist says. We are hoping she will put me on the keto diet. Maybe that will help control my seizures. We will see. Please pray that God will work through my neurologist to lead us in the right direction.