Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Tuesday, May 4, 2010

Seizures leave me alone

I'm still having lots of spasms. I am having about 70-100 a day. I wish they would just leave me alone. We did increase my topamax yesterday so hopefully they will decrease over the next couple of days. The spasms are not as intense so that is a good thing. Well I had PT and OT yesterday. I did much better this week. I actually stayed awake for both therapies. I was tired during OT but I managed to get through it. I'm definitely more alert and my eyes are looking less drowsy everyday. My mommy got a phone call from my early steps PT today so I will start that on Thursday. My mommy and daddy are so excited because we have been waiting for about 2 months for that to start. I am very excited to meet my new therapist and very thankful that she has chosen to work with me. Ok well I'll update you later and let you know how my spasms are doing. Please continue to pray for me. Love ya, Jadon

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