Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.
Saturday, May 8, 2010
So much medicine.
Well you would never guess what happened. My ACTH medicine came today. The fed ex man just left it outside. Luckily my Mar came to the house and saw it out there before it got to hot. Crazy fed ex guy must not have read anything on the box or in the notes. Oh well at least we got it and it was the right amount. I got my first injection tonight. I will be on this medicine for the next 5 weeks. I'm also still on my keppra, topamax, and clonazepan. I started zantac too to help with my stomach because this steroid upset your stomach. I'm still having lots of spasms so hopefully they will get better soon. I sure hope so because I'm on alot of medicine. I did get to go take my pictures today before I started the new meds. I did great considering I'm drowsy. I attached a picture of my session today. I'm such a happy baby!!!!