Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Friday, May 21, 2010

I'm such a big boy!!


Look at me!!! I am able to ride in a buggy now. If you notice I have a pillow in front of me just in case I have a seizure. That way I will not hit my mouth on the buggy. I was just so excited to get to ride in the buggy and not my infant seat. Can you tell? Just look at that smile. Well my blood pressure was great today. I have had about 20 spasms. They are worse in the mornings and then they get better after lunch. Don't really know why but thats what is happening. God is truly amazing and he is blessing me daily. Even though I am having that many seizures a day I am still developing. Isn't that awesome!!!:) Thank you so much for praying for me. I truly believe that I am doing so well because I have so many people praying for me. I am one blessed little boy. Please pray that I continue to develop and that I will be able to get rid of these seizures. I take my last high dose of ACTH tomorrow. I then take lower doses for the next two weeks until I'm totally off of this medicine. I really don't know what our next step will be. We see our neurologist next Friday so I will let you know. Well everyone have a great weekened. Love ya, Jadon

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