Jadon's Infantile Spasms Story

I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.

Tuesday, January 10, 2012

A long 10 hours

I went back to the OR this morning around 8:30. I was such a brave boy. I never even cried. My surgery lasted about 9 hours and then I was in recovery for 1 hour before I got to see my mom and dad. It was a very long 10 hours but I did excellent in surgery.
The nurse called my family every hour and let them know I was doing fine. Im now in the PICU and should be able to go to a regular room tomorrow. The great news is I'm already moving my right leg. The doctors didn't know if I would have any movement but I do. I'm not moving my right arm at all and I have weakness on the right side of my face. I should get movement back within the next few weeks. I will always have right sided weakness though. We knew this before surgery. Right now we are thanking God for protecting me during my surgery, for them not having to give me much blood, and for Him giving us the strength to make it through this day. We have a long way to go and we still don't know all the results of the surgery but each day we will know more. So tonight when you pray for me don't forget to thank God for what he has done and will do in my life. Oh and we have seen 0 seizures since 5:30 when I woke up from surgery. It's way to early to know if I'm seizure free but this is huge for me to go 6 hours with no seizures. I haven't done that in a very long time. So tonight my tears are tears of happiness. I'm giving all the praise to God.
Sent from my iPhoner


Julie G'sell said...

GOD is Great! I pray that you will become exponentially better each day.
I love you and can't wait to hold you again. Play hard and finish strong.
Love, Ms Julie

Charley said...

Jadon u are an awesome lil boy and god is an awesome god! We have been praying for u and all of kingdom life church has too! Can't wait to meet u! The Harper family in Loranger

Anonymous said...

So glad that you are doing better. With God anything is possible. I dont know you but your story has touched my heart. Im praying that you get better real soon

Anonymous said...

Jadon you are such a brave little boy! I know that God will continue to bless you and your family and keep you in his care. Your journey has caused so many people to see the power of prayer and how awesome God is. You are in the hearts and prayers of thousands whose lives you have touched.

Barry and Kay McDaniel said...

Please know that my family and I are praying for you -- for strength, for wisdom, for total recovery. The Lord is in control and knows all things. All things work for good to those who know and love the Lord. Rest in those facts and have peace. We are surrounding him in prayers and love.

donna brown said...

Praise Jesus. I believe that Jadon is going to receive a miracle and going to just thrive and be healed. The power of prayer is amazing and there are so many praying for ur little angel. I pray throughout the day but me and my two year old grandson kneel every night before bed and ask God to give Jadon a miracle and to give his whole family strength and comfort while we wait for His miracle. God Bless You All !!