I went back to the OR this morning around 8:30. I was such a brave boy. I never even cried. My surgery lasted about 9 hours and then I was in recovery for 1 hour before I got to see my mom and dad. It was a very long 10 hours but I did excellent in surgery.
The nurse called my family every hour and let them know I was doing fine. Im now in the PICU and should be able to go to a regular room tomorrow. The great news is I'm already moving my right leg. The doctors didn't know if I would have any movement but I do. I'm not moving my right arm at all and I have weakness on the right side of my face. I should get movement back within the next few weeks. I will always have right sided weakness though. We knew this before surgery. Right now we are thanking God for protecting me during my surgery, for them not having to give me much blood, and for Him giving us the strength to make it through this day. We have a long way to go and we still don't know all the results of the surgery but each day we will know more. So tonight when you pray for me don't forget to thank God for what he has done and will do in my life. Oh and we have seen 0 seizures since 5:30 when I woke up from surgery. It's way to early to know if I'm seizure free but this is huge for me to go 6 hours with no seizures. I haven't done that in a very long time. So tonight my tears are tears of happiness. I'm giving all the praise to God.
Sent from my iPhoner
Jadon's Infantile Spasms Story
I created this blog so that our friends and family will be able to follow Jadon as he fights to overcome Infantile Spasms. I also hope that if anyone else is going through this, they will find this site helpful. I have posted a video of what infantile spasms look like, as well as everything we are going through. I hope by posting this I am able to get help for other children who are having these spasms. The earlier this is diagnosed the better. Feel free to leave me comments. I love to hear from you. If you have any questions just email my mommy. She likes to help people in any way she can.